Humbly Courageous Blog

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Encouraging Life Beyond Disability

Hi, I’m Amy. I live life with a condition called Bethlem Myopathy which is a rare form of Muscular Dystrophy. I like to help others by showing how I live well with a debilitating condition. I was born with this disease, so it’s the only way I know life. I continue to work on embracing myself and using that to help others. HumblyCourageous.org is now the home of the Humbly Courageous blog I began in 2019 to process the journey of my life with a disability.

Humbly Courageous Blog

The Sydney Marathon

September 15, 2026

WOW! Sydney, you were a tough one. We knew going into this 5th world marathon major that it was going to be challenging for my husband with the duo bike. The hills of the New York City marathon still haunt […]

Hope Infusion #14

April 24, 2026

Hello, welcome to Humbly Courageous! I am glad you are here. It has been a while since I have put out a new blog post. Life has been busy! My husband and I are working on some new projects that are […]

2025 Wrap Up

December 26, 2025

Hello, welcome to Humbly Courageous. I’m so glad you are here!It seems like the blink of an eye since I was wrapping up 2024, yet here I am trying to remember all that I did in 2025.I would like to […]

A Humbly Courageous Team

November 15, 2025

Hello! Welcome to a new week at Humbly Courageous. I am glad you are here! Last Saturday, my husband and I completed our first half marathon together at the CNO Financial Indianapolis Monumental Marathon. It feels strange to say half […]

Joy Uncovered

October 17, 2025

Hello, welcome to Humbly Courageous. I am so glad you are here. I hope my blog brings a sense of understanding  what living a life with a disability can be like, or helps you to feel seen as a human […]

Re-Introduction

Re-Introduction

September 26, 2025

Hello! I am so grateful to all of my readers for being here! I have noticed that I have a lot of new readers here at Humbly Courageous. I wanted to share a blog post this week, to introduce myself […]

Dear Disabled Motherhood

August 15, 2025

Dear Disabled Motherhood,As a child, I never dreamed being a mother could be my reality. As I got older, I boldly proclaimed I did not want kids every chance I got. I was suiting up in an armor of protection, thinking […]

Community Chat-Sarah

Community Chat-Sarah

August 8, 2025

Hello and welcome to a new week at Humbly Courageous! This week I am so excited to share a new community chat with you. Sarah and I have something very unique in common. We both live with the rare neuromuscular […]

Stillness

July 25, 2025

Hello and welcome to a new week at Humbly Courageous. I am so glad you are here sticking with me, even during my absence. I took a break, but not purposefully. I think I just needed a bit of a break […]

I Have Learned

June 13, 2025

Hello, and welcome to a new week at Humbly Courageous. I am so glad you are here. Living my entire life disabled, life has been a learning process. As with any life, you live and learn. Some things take much longer […]

Dear Identity

Dear Identity

June 6, 2025

Dear Identity, I long to know you, to get comfortable with who you, are but you are ever changing, escaping from me just as I start to sync with you. Most of my life spent in an identity crisis, I […]

The Enemy Within

The Enemy Within

May 2, 2025

Hello and welcome to a new week at Humbly Courageous. I am so glad you are here. Every day when I wake up, it’s like I am waking up to the enemy within. I instantly know, I will again be […]